Instruments for measurement of the quality of life of patients infected with HCV virus

Lidia Sierpińska

Abstract


Introduction. Hepatitis C is an important medical and social problem inPoland and worldwide. Among the main tasks of a nurse and physician in the care of this group of chronically ill patients is an improvement in the quality of their life. While assessing the quality of life the essential issue is the level of health, from both the objective and subjective aspects. These tasks may be reliably performed only by means of appropriately selected research methods and instruments.

Objective. Presentation of research instruments for investigating the quality of life of patients with the diagnosis of hepatitis C.

Materials and method. General and specific research instruments for the assessment of the quality of life were analyzed based on Polish and international literature.

Results. Studies of the quality of life of patients with hepatitis C enable recognition of the types of specific problems occurring in their daily functioning. The instruments most frequently used by researchers include the following questionnaires: SF-36, HUI (Health Utility Index), NHP (Nottingham Health Profile), EQ-5D (Quality of Life Questionnaire). The specific tool for the assessment of the quality of life of patients with chronic liver disease due to HCV infection is the questionnaire CLDQ–HCV (Chronic Liver Disease Questionnaire — Hepatitis C). The results of the study provide opportunities for the improvement of the quality of life of these patients by the reorganization of medical, psychological, social and rehabilitation care, which usually lasts for the rest of life.

Conclusions. The presented instruments for the assessment of the quality of life of patients with the diagnosis of hepatitis C will allow the researchers recognition of the specific aspects of functioning of these patients in the bio-psycho-social sphere.


Keywords


quality of life, medical and social problems, hepatitis C

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References


Telka E. Ocena jakości życia w wymiarze psychologicznym, zdrowotnym i społecznym. Nowa Medycyna 2013, 4: 184-186.

Schipper H. Quality of life: principles of the clinical paradigm. Journal of Psychology 1990, 8(23): 171-185.

Patrick D.L., Erickson P. Health Status and Health Policy.Quality of Life in Health Care Evaluation and ResourceAllocation. Oxford University Press, New York: Oxford University Press; 1993.

Wojtkiewicz M., Panaszek B. Możliwości oceny wpływu pokrzywki przewlekłej i obrzęku naczynioruchowego na jakość życia pacjentów. Post Dermatol Alergol 2010, XXVII, 4: 291–296.

Ostrzyżek A. Jakość życia w chorobach przewlekłych. Problemy Higieny i Epidemiologii 2008, 89(4): 467-470.

Tylka J., Piorowicz R. Kwestionariusz oceny jakości życia SF-36 – wersja polska. Kardiologia Polska 2009, 67(10): s.1166-1169.

Kamińska A, Bednarska A, Radkowski M. Pozawątrobowa replikacja wirusa zapalenia wątroby typu C (HCV). Przegl. Epidemiol. 2003, 57: 317-322.

Sierpińska L. Hepatitis C as a health problem in Poland. Jacobs Journal of Nursing and Care 2015, 1(1): 1-5.

Cieślik B., Podbielska H. Przegląd wybranych kwestionariuszy oceny jakości życia. Inżynieria Biomedyczna 2015, 21(2): s. 102-135.

Furlong W.J., Feeny D.H., Torrance G.W., Barr R.D. The Health Utility Index (HUI) system for assessing health related quality of life in clinical studies. Ann Med 2001, 33: 375-384.

Turska A., Skowron A. Metody oceny jakości życia. Farmakoekonomika 2009, 65(8): 572-580.

Hunt S.M. Measuring health in clinical care and clinical trials.In: Measuring health: a practical approach. Telling Smith G (ed.). Chichester: John & Sons; 1986.

Majkowicz M., Chojnacka-Szawłowska G. Metodologiczne problemy badania jakości życia.W: de Walden-Gałuszko K., Majkowicz M. Jakość życia w chorobie nowotworowej. Gdańsk: Wyd. Uniwersytetu Gdańskiego; 1994.

Wrześniewski K. Badanie subiektywnego stanu zdrowia za pomocą polskiej adaptacji the Nottingham Health Profile.W: Karski J, Kirschner H, Leowski J. (red.): Współczesne potrzeby i możliwości pomiaru zdrowia. Warszawa: Ignis; 1997.

Szende A., Janssen B., Cabases J. Self-Reported Population Health: An International Perspective based on EQ-5D. Netherlands: Springer; 2014.

Wołowicka L., Jaracz K. Polska wersja WHOQOL – WHOQOL 100 i WHOQOL-BREF.W: Wołowicka L (red.): Jakość życia w naukach medycznych. Poznań: Akademia Medyczna im. Karola. Marcinkowskiego; 2001.

Jaracz K., Kalfoss M., Górna K. (et al). Quality of life in polish responders: psychometric properties of the Polish WHOQOL – Bref. Scand. J. Car. Sci. 2006, 20(3): 251-260.

Jaracz K., Kalfoss M., Górna K. (et al). Quality of life in polish responders: psychometric properties of the Polish WHOQOL – Bref. Scand. J. Car. Sci. 2006, 20(3): 251-260.

Kokoszka A., Jodko A., Radzio R. Krótka metoda oceny radzenia sobie z chorobą: geneza i opis roboczej wersji metody. Przewodnik Lekarza 2003, 10: 39-46.

Juczyński Z. Narzędzia pomiaru w promocji i psychologii zdrowia. Warszawa: Pracownia Testów Psychologicznych; 2001.

Juczyński Z. Narzędzia pomiaru w psychologii zdrowia. Przegląd Psychologiczny 1999, 42(4): 43-56.

Juczyński Z. Narzędzia pomiaru w psychologii zdrowia. Przegląd Psychologiczny 1999, 42(4): 43-56.

https://clinicaltrials.gov/ct2/show/NCT00863109 - dostęp 03.05.2017 r.

Ware J.E., Kosiński M. Interpreting SF-36 summary health measures: a response. Qual Life Res 2001, 10: 405-413.

Żołnierczyk-Zreda D., Wrześniewski K., Bugajska J., Jędryka-Góral A. Polska wersja kwestionariusza SF-36v2 do badania jakości życia. Warszawa: CIOP-PIB; 2009.

Sierpińska L. Evaluation of the quality of life people infected with HCV – proposed research instruments. Medical and Biological Sciences 2015, 29(4): 13-16.




DOI: http://dx.doi.org/10.5281/zenodo.573094

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